World Hemophilia Day is an international day creating awareness about hemophilia and other bleeding disorders. This day is celebrated every year on April 17, the birthday date of Frank Schnabel, founder of the World Hemophilia Federation. From 1989, World Hemophilia Day is commemorated for the whole community of bleeding disorder which comes together to celebrate the continuous progress in treatment while raising awareness and bringing recognition and attention to the problems of medical care to the general public.
This year 17th April 2023 is the 33rd anniversary of World Hemophilia Day. The success of this celebration is an indication of our community’s commitment and tight-knit existence.
logo of World Hemophilia Day
What is Hemophilia?
Haemophilia is an inherited condition that causes bleeding long after injury or surgery and painful swelling either after or without injury (‘Inherited’ – a disease that is passed from parents to children through their genes). Haemophilia is the most common x-related condition that has affected about 1 in 10,000 male births.
About World Federation of Hemophilia
The World Federation of Hemophilia (WHF) is a non-profit organization which is working for more than 50 years for the people who are inherited with the bleeding disorder including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. The organization was established in 1963, and it is a network of internationally patient organizations in 140 countries with official recognition from the World Health Organization.
Theme for World Hemophilia Day 2023
Every year the World Federation of Hemophilia decides the theme which raises awareness about the bleeding disorder. This year the theme of World Hemophilia Day 2023 is “Access for All: Prevention of bleeds as the global standard of care
This year’s event is centered around the theme “Access for All: Prevention of Bleeds as the Global Standard of Care.” Continuing on the topic from the previous year, the community is urged to unite in 2023 to lobby local policymakers and governments for greater access to treatment and care, with a focus on better bleeding control and prevention for all individuals with bleeding disorders (PWBDs). To improve those people’s quality of life, this entails the application of home-based treatment as well as preventative treatment.
This year’s focus on adapting to change: providing long-term treatment in a different situations. This critical event involves getting together the world with global bleeding disorders. Due to the recent COVID-19 pandemic, the need for achieving that goal has never been more urgent. Our society includes a wide variety of individuals, including patients, their relatives, nurses, doctors and scientists, each of whom was influenced in a different way by the pandemic. We must try to aid these people long after the pandemic has stopped, and after it has disappeared. Over the past year, our world has changed, but one thing hasn’t: we will stay stronger in our common goal of “Treatment for All”.
Color of World Hemophilia Day
Red Color is dedicated to this day. Light it up Red is the campaign of World Hemophilia Day 2023 for showing support to the global bleeding disorder community. Last year, thousands of people around the world came together to show their support by lighting up more than 70 major landmarks in cities around the world.
How to Get Involved in World Hemophilia Day
- Write- Take a step to write your story on World Hemophilia Day
- Share- take the picture of the monuments of Light it up Red.
- Tell- tell the world how to get involved.
- Engage- to make a big day engage local media
- Download the resources through WFH
- Volunteer- Become volunteers at the World Hemophilia Treatment center.
- Organize an event on World Hemophilia Day
- Send your content through EMAIL to Erika Laincy, WFH Marketing & Communications Manager at [email protected]
Swikriti Dandotia
